more about me

My life story is so long, a lot to tell, I even don't know where to start. Mainly, it is because we have a rare, mystery and horrible genetic disease happened in our family. This disease is called MELAS (I had already written the long name in my previous blog), it a kind of mitochondria-disorder diseases. When the mitochondria are not functioning properly, an "energy crisis" can develop in tissues such as muscle, brain and heart, which normally are heavy energy consumers. This genetic disease is passed from the mother to her child via mtDNA, men do not, therefore, it happens in my mother-side family.

It is hard to trace back to many generations, for sure, my mother’s mother had it, my mother (she is 80 this year) has it, I have MELAS, unfortunately, my daughter passed away in 2002 with MELAS, she was 14. My younger brother just passed away with MELAS last December. In the meantime, in our family, my mother, me, my son (13), my youngest sister have MELAS, but we have different level of symptoms developed.

Due to the MELAS, I am sick from head to toes, such as muscles-weakness, muscle-pain, poor-vision, deaf, osteoporosis, diabetes---, you name it. Anyway, I will continue to tell everybody more about my life story later the days.

Since I should write a blog as a diary, I should write something updated. Today was a nice day in here (capital of Canada), sunny, the temperature was around zero in the mid-day, snow was melting. I hope the ground hound was right, Spring should be here soon. I didn’t go out in the morning, but I still went to the computer class in the afternoon. (I will tell you more about me).