Hi, I am Joyce in Canada. This is my frist blog. I am a housewife, no need to go to work everyday, but I have to take care of my husband and my son, also have to do housework. My life story is a long one, I have a lots to say. Since this is the first blog, I don't prepare to write a lot, in the future, I will tell everybody about my life story.
Actually, I had already written two books about my life story. The first one was published in 2003 which I wrote the story of my daughter, she passed away in 2002 at 14 years old. Unfortunately, we have a very rare, mystery and horrible genetic disease happened in our family, it is called MELAS, Mitochodrial Encephalopathy Lactic Acidosis and Stroke, it is a kind of Mitochondria Disorder Disease. This book was called "Melas Angels", it was written in the memory of my daughter, this book had Chinese version and English version.
The other book was published in 2005 which was my true life story. Since I had a miserable life, I wanted to write down what I experienced. This book was called "Miserable Life", it had only Chinese version. I wish to re-write it in English someday, but I don't have money to publish it.
Life is tough. I always have a lot to say, complain. Anyway, English is my second language, pardon my spellings and gramma. I hope I can write something to tell everybody everyday.
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I am holding the book "Melas Angels" which was the life story about my daughter.
ME AND MY BOOK
I am holding the book "Melas Angels" which was the life story about my daughter.
About Me
- miserable lady
- I am a middle-age housewife. Unfortunately, we have a rare, mystery and horrible genetic disease happened in my mother-side family. This disease is called Mitochondrial Encephalopathy Lactic Acidosis and Stroke, MELAS for short form, it is a kind of mitochondria-disorder diseases.It affects the entire body. My daughter passed away with this MELAS in 2002 at the age of 14, my younger brother passed away with the same disease last December (2006), my son also have this disease, but the symptoms (I hope,never) developed. This genetic disease is passed by the mother to the child via mtDNA, of course, I have this disease. In the meantime, I am a long-term disabled, I have diabetes, osteoporosis, muscle-weakness, muscle-pain, poor vision and I am a deaf. Actually, I am struggling with this genetic disease everyday. I never know when will this MELAS cause my life. I am a Chinese-Canadian, I was a little girl when I immigrated to Canada 35 years ago. English is my second language, excuse my spellings and grammar.
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